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Thread: Jerrod News

  1. #1
    Missouri Star

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    Default Jerrod News

    The study that Jerrod is a part of is in the news (well, the college news anyway).

    https://www.connecticutmag.com/issue...nwTc1kz1QFvaZA

    Jerrod is doing well. 1 dose of corn starch a day, less than 5 grams. He told me I couldn't even make a gravy with what he's taking now. I teased him about is corn starch hording habit, was he able to walk past the corn starch and not reach to pick up a weeks worth. To which I got the standard laugh, and "I know, right?"
    Katrina


    “Nothing can dim the light which shines from within.”
    ― Maya Angelou

  2. Thanks SuzanneOrleansOntario, Star lover, chelea thanked for this post
  3. #2
    Missouri Star

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    Default Re: Jerrod News

    KPH so glad to hear Jerrod is doing better. Keeping him in Ts & Ps.

  4. #3
    Missouri Star

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    Default Re: Jerrod News

    So happy to hear Jerrod is doing well. Being down to one dose a day is such a HUGE improvement and also a great gauge to show how successful the gene therapy study has been for him so far.

  5. #4
    Applique Angel

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    Default Re: Jerrod News

    Thanks for the update.glad he is doing well.

  6. #5
    Missouri Star

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    Default Re: Jerrod News

    It must be a great ray of hope for all those families suffering to know that Jerrod and his fellow subjects are doing so well. Wishing him the best possible outcome.

  7. #6
    Missouri Star

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    Default Re: Jerrod News

    Praising the Lord for such great news!

  8. #7
    Missouri Star

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    Default Re: Jerrod News

    How wonderful. Thanks for the update.
    Blessed are the children of the piecemakers for they shall inherit the quilts!

  9. #8
    Missouri Star

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    Default Re: Jerrod News

    That is great news and promising treatment for those with this disorder.

    Enjoy life and do what makes you happy. Everything else will follow.

    Every day I try to do one thing that challenges my comfort zone.

  10. #9
    Missouri Star

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    Default Re: Jerrod News

    Yay for Jerrod! I find it amazing that such a small amount of a common ordinary substance, cornstarch, can be life saving.

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