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    Jerrod News

    The study that Jerrod is a part of is in the news (well, the college news anyway).

    https://www.connecticutmag.com/issue...nwTc1kz1QFvaZA

    Jerrod is doing well. 1 dose of corn starch a day, less than 5 grams. He told me I couldn't even make a gravy with what he's taking now. I teased him about is corn starch hording habit, was he able to walk past the corn starch and not reach to pick up a weeks worth. To which I got the standard laugh, and "I know, right?"
    Katrina


    “Nothing can dim the light which shines from within.”
    ― Maya Angelou

    #2
    Re: Jerrod News

    KPH so glad to hear Jerrod is doing better. Keeping him in Ts & Ps.

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      #3
      Re: Jerrod News

      So happy to hear Jerrod is doing well. Being down to one dose a day is such a HUGE improvement and also a great gauge to show how successful the gene therapy study has been for him so far.

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        #4
        Re: Jerrod News

        Thanks for the update.glad he is doing well.

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          #5
          Re: Jerrod News

          It must be a great ray of hope for all those families suffering to know that Jerrod and his fellow subjects are doing so well. Wishing him the best possible outcome.

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            #6
            Re: Jerrod News

            Praising the Lord for such great news!
            💫 Star lover

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              #7
              Re: Jerrod News

              How wonderful. Thanks for the update.
              Blessed are the children of the piecemakers for they shall inherit the quilts!

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                #8
                Re: Jerrod News

                That is great news and promising treatment for those with this disorder.

                Enjoy life and do what makes you happy. Everything else will follow.

                Every day I try to do one thing that challenges my comfort zone.

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                  #9
                  Re: Jerrod News

                  Yay for Jerrod! I find it amazing that such a small amount of a common ordinary substance, cornstarch, can be life saving.

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