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    We finally have some answers.

    It isn't great news, but could be a lot worse. We found out today what they believe are the cause for Gabes recent seizure activity. He has had 3 in the last 6 weeks. The do not believe they are cause from his TBI. They believe it is something called Benign Rolandic Epilepsy, with centrotemporal spikes. It most commonly spikes at the age he is currently, almost 9. They also believe that he will outgrow them by the time he is between 14-18. The cause is thought to be genetic, and since we know so little about his abusers family...we have no idea about any of that. The plan is to increase his seizure meds a little at a time, to get them completely under control. They may even change the one he is currently on. They are also most likely to occur upon his going to sleep, or waking up. All of those so far, that we are aware of, have happened after he has woken up in the morning. He has begun doing these severe leg twitching in his sleep, so he will also have to undergo an overnight EEG study to see if those are also small myclonic seizures.

    So as bad as it sounds, I am basically happy with the news. I have faith that he is not going to have a lifetime of multiple daily seizures , and he will most likely outgrow them over time. We just need to get his meds regulated, and try to keep him seizure free.
    Thank you to all of you who so diligently pray for my grandson and his family. It truly means the world to me.
    Blankets wrap you in warmth, quilts wrap you in love

    Marilyn......
    sigpic

    #2
    Re: We finally have some answers.

    Im glad that it is hopeful auntiemern. It's all so scary
    https://forum.missouriquiltco.com/co.../icon_wave.gif
    Women are Angels. When someone break's our wings we will continue to fly-usually on a broomstick.We're flexible like that.

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      #3
      Re: We finally have some answers.

      Thanks for the update.

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        #4
        Re: We finally have some answers.

        Been waiting and watching for the update. You'r right - it is good news that a medication regulation issue and that he will eventually outgrow the seizures. Nice to know they are monitoring him so closely and there is further investigation and testing to be done.

        Strength to Gabe, his family and you Marilyn. Stressful time but promising results!

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          #5
          Re: We finally have some answers.

          Thank you for the update. Prayers for the sweet little boy.

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            #6
            Re: We finally have some answers.

            Marilyn, I'd missed your posts on Gabe's seizures. But I'll start praying now! He's such a sweet little boy.
            Toni ... If I keep sewing long enough, will they make their own dinner?

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              #7
              Re: We finally have some answers.

              Marilyn, I am glad to hear that it is not as bad as it could have been. It sounds like the doctors will be able to deal with it and that's good news. Sending more positive thoughts and hugs.

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                #8
                Re: We finally have some answers.

                I'm so glad, well I guess relieved is more like it, to hear this news about that sweet little guy. I've actually known kids that have outgrown epilepsy, so it makes gives me confidence that Gabe's gonna be ok. We'll keep those prayers coming for your little buddie Marilyn.

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                  #9
                  Re: We finally have some answers.

                  So thankful for you and your family for the diagnosis.....looks like an end in sight....eventually he'll out grow it....what a blessing!
                  Wonderful news. Love and hugs to you all....such a journey.
                  💫 Star lover

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                    #10
                    Re: We finally have some answers.

                    Continued prayers for Gabe and your family.

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                      #11
                      Re: We finally have some answers.

                      This is hopeful news. Continued prayers and hopes for a very bright future for Gabe.
                      sigpicwww.whisperofrose.blogspot.com


                      Scottie Mom Barb

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                        #12
                        Re: We finally have some answers.

                        Got you all covered! Just knowing what's happening makes it a bit easier to deal with. Prayers will continue.
                        Sometimes, when there's a raging fire,
                        it's best not to try to put it out with gasoline.

                        "...pal carajo con la negatividad..."

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                          #13
                          Re: We finally have some answers.

                          Will continue to lift little Gabe and family in prayer. The prognosis sounds so hopeful.
                          Katrina
                          “Nothing can dim the light which shines from within.” Maya Angelou

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                            #14
                            Re: We finally have some answers.

                            Prayers continue for Gabe and you family.
                            Courage is being scared to death, and saddling up anyway. ~John Wayne

                            Quilting is my passion . . . chocolate is a close second!

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                              #15
                              Re: We finally have some answers.

                              Glad to hear you finally have the answer. Will keep Gabe in my prayers.


                              Beth
                              Happiness is a FULL bobbin!

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