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    GaGa
    Senior Member

  • GaGa
    replied
    Re: it's happening....

    I'm sure MM is discouraged by the fact that he's feeling crappy - and losing his hair. I know you have the strength to help him and you will both weather this storm! My thoughts and prayers continue for both of you!!!

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  • ucarrieme
    Senior Member

  • ucarrieme
    replied
    Re: it's happening....

    Originally posted by bubba View Post
    His hair is falling out. They had told us that should not happen with the type chemo he is on, but apparently they were wrong. I've been instructed to start making him hats, so I'll be off to look for baby fleece tomorrow. I remember that is what his mom liked on her skin.

    He started the second round last Friday and is not handling it well. He has been very, very tired and his stomach has been upset since treatment. So far, he is down about twenty pounds.

    The second treatment in this round is Friday again.
    I'm so sorry! I'm praying for him!

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  • pcbatiks
    Senior Member

  • pcbatiks
    replied
    Re: it's happening....

    Originally posted by bubba View Post
    I'm fine with the hair coming out. I know it will come back. The physical appearance does not both me....although wrinkles are showing up where he used to have meat. He, however, is bothered by the hair, and also how tired he is (although he has always liked sleeping and had no problem with it, now that it seems it's all he does, he does not like it!!)

    I've been working on tidying up my studio the past few days. Found some fleece tucked away so
    I'll get the type hat made he wants.
    Pat, I know MM must be discouraged by how tired he is. My DH got discouraged from how very tired he was during his chemo treatments. I tried to encourage him by reminding him that he would have to get rest so he could get better. Thinking of you both.

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  • jjkaiser
    Senior Member

  • jjkaiser
    replied
    Re: it's happening....

    This sounds so horrible and the fact it goes on for weeks or months is hard on everybody and just seems so unfair! I am so very sorry that you are going through this. Hopefully the cancer goes into complete remission. Then victory will be yours and we can all celebrate with you!

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  • sew-what2015
    Senior Member

  • sew-what2015
    replied
    Re: it's happening....

    I continue to pray for MM, you and your family.

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  • bubba
    Senior Member

  • bubba
    replied
    Re: it's happening....

    I'm fine with the hair coming out. I know it will come back. The physical appearance does not both me....although wrinkles are showing up where he used to have meat. He, however, is bothered by the hair, and also how tired he is (although he has always liked sleeping and had no problem with it, now that it seems it's all he does, he does not like it!!)

    I've been working on tidying up my studio the past few days. Found some fleece tucked away so I'll get the type hat made he wants.

    Leave a comment:

  • SallyO'Sews
    Senior Member

  • SallyO'Sews
    replied
    Re: it's happening....

    Pat, I don't know what chemo regimen MM is on, but I had FolFox (?? It's been 9 years...); they told me I would keep my hair, and sure enough, along about the 2nd or 3rd treatment, mine fell out. By the handful. I lost about 1/2 my hair in a month. Happily, I used to have a TON of hair as a young person, so I never had to go to a wig. I did cut it all very short (in anticipation that I might need to get that wig), which I actually liked. It was the only time in my life I could dry my hair by running my fingers through it for 90 seconds! And guess what? It came back as soon as I finished the last treatment. It's finer than before, and there is a little less of it. But it's back. Be encouraged, dear one. Remember that the side effects mean the drug is doing what it's supposed to. Hang in there, and let us know how YOU're doing - praying for you both.

    Leave a comment:

  • bubba
    Senior Member

  • bubba
    replied
    Re: it's happening....

    Originally posted by kaydee View Post

    Btw, I can totally relate to the "sympathetic illness" you feel when mm is feeling sick. That totally happens to me whenever my husband or kids are ill - even when they tell me over the phone! My husband is traveling (Austin/Denver) this week. He has a really bad cold. Everytime he calls me my throat starts to hurt! Then I feel better until he calls again! So weird!
    What I have is not sympathetic. I have reactions to the poisons they are putting into him as they leave his body. It's quite odd. The oncologist thought I was crazy, but we have since found information on it and it is a true thing.

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  • kaydee
    Senior Member

  • kaydee
    replied
    Re: it's happening....

    Bubba, I'm sorry to hear of mm's illness and difficult treatment. My thoughts are with both of you. I don't know what else to say as this isn't anything I've experienced. Just know I'm thinking of you and sending good thoughts and prayers your way.

    Btw, I can totally relate to the "sympathetic illness" you feel when mm is feeling sick. That totally happens to me whenever my husband or kids are ill - even when they tell me over the phone! My husband is traveling (Austin/Denver) this week. He has a really bad cold. Everytime he calls me my throat starts to hurt! Then I feel better until he calls again! So weird!

    Anyhow, hugs and thoughts to both of you.

    Leave a comment:

  • bubba
    Senior Member

  • bubba
    replied
    Re: it's happening....

    Originally posted by Caroline T. View Post
    When my mother went thru Chemo, other than the metallic taste of some foods, she had no problems with foods or loss of appetite, but did lose her hair after the first round. My MIL on the other hand was the polar opposite, the only thing she could stomach was Butter Pecan ice cream and kept all her hair thru out her treatments.

    The reaction to chemo is as varied as individuals are. So if canned cheese and crackers are what he craves and his stomach can tolerate, then by all means canned cheese and crackers it is for breakfast . Glad he's finding some foods that will sustain him thru this tough go round.
    He is eating whatever he likes. Funny thing is, I am the one w/the metal taste in my mouth and a lot of foods, and even just looking at the pictures make me almost throw up.

    Originally posted by ilive2craft2 View Post
    So sorry that you are both having to go through this. I remembered something about a special kind of limes for nausea that are given to cancer patients for free. I did a search for the thread - the talk about the limes is on page 3 in case the link doesn't go right to it - http://forum.missouriquiltco.com/sho...ht=anti+nausea Hoping this is helpful.
    I have the information on the limes....so far he does not want them.

    Leave a comment:

  • ilive2craft2
    Senior Member

  • ilive2craft2
    replied
    Re: it's happening....

    So sorry that you are both having to go through this. I remembered something about a special kind of limes for nausea that are given to cancer patients for free. I did a search for the thread - the talk about the limes is on page 3 in case the link doesn't go right to it - http://forum.missouriquiltco.com/sho...ht=anti+nausea Hoping this is helpful.

    Leave a comment:

  • Caroline T.
    Senior Member

  • Caroline T.
    replied
    Re: it's happening....

    When my mother went thru Chemo, other than the metallic taste of some foods, she had no problems with foods or loss of appetite, but did lose her hair after the first round. My MIL on the other hand was the polar opposite, the only thing she could stomach was Butter Pecan ice cream and kept all her hair thru out her treatments.

    The reaction to chemo is as varied as individuals are. So if canned cheese and crackers are what he craves and his stomach can tolerate, then by all means canned cheese and crackers it is for breakfast . Glad he's finding some foods that will sustain him thru this tough go round.

    Leave a comment:

  • bubba
    Senior Member

  • bubba
    replied
    Re: it's happening....

    Oddly enough, he has been drinking Squirt, and that tastes fine. We do have ginger ale as well since he likes it mixed with cranberry juice!

    Leave a comment:

  • Guest
    Guest

  • Heather
    Guest replied
    Re: it's happening....

    I'm sorry this is happening it's such a nasty process. I agree with others who have said just go ahead and shave his head. I found it was empowering for me when I did it. Just one little thing you can take control over when there isn't anything else in your control. Try ginger ale instead of coke, it helps settle tummies too. Good wishes to both of you!

    Leave a comment:

  • bubba
    Senior Member

  • bubba
    replied
    Re: it's happening....

    Originally posted by PatinValrico View Post
    Hi Pat...I am so sorry to hear of your MM problems with the chemo and its side effects. I was a caregiver for my mother as she went through this treatment. She drank a lot of Ensure to help with the nutritional balance. Perhaps that might help. Also, I have knitted a bundle of watch caps or hats that can be worn by either a man or a woman. The yarns are soft and warm. I would like to give some to you if I may. I have always loved to knit, however in FL we usually do not really get cold enough to use the hats or scarves. Please send me your address if you think this might help. If we have any other forum member that might be able to use the hats, please forward me your mailing addresses. Prayers for both you and yours.
    Pat/Roger Metcalf
    4303 S J St
    Tacoma WA 98418

    When his mom went thru this, I got her a fantastic hat that was made for snowboarding. It has a drawstring on top so you can open it if you get too warm. I also made her several hats, all of which he refuses to wear, because they were hers.

    He is craving things we don't normally have on hand. Last night I made a late night run to the store for Tang and crackers with cheese in a can. When I woke up this morning, he was at the table having both for breakfast!

    When I came home after the retreat, being gone just a week, I was surprised at the difference in his appearance. Our daughter had not seen him for two weeks because she was sick and saw him the other night. She was pretty shocked. Seeing him day to day, I think he looks fine, but it was quite a shock to her. I'm sure the younger grandkids will really be scared!

    Leave a comment:

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