Updated posted by Suzanne Gilbert Heikkila 0 mins ago
It has been some time since...
It has been some time since our last update. On January 13th Jesse had his breathing tube successfully removed and eventually returned to the oncology floor. The team at Children’s Hospital worked very hard to create a plan to get Jesse home. On the day of discharge everything was going according to plan. The Massachusetts State Police patiently waited to escort Jesse home while our community eagerly waited to wave to Jesse. Folks lined the streets of Middleboro with yellow balloons. Just at that time, Jesse started having more difficulty breathing. We were devastated to announce that Jesse would not be returning home that day. However, we were overcome with joy that so many folks came together to provide Jesse with a spectacular homecoming.
Jesse's breathing become more difficult due to another occurrence of DAH - Diffuse Alveolar Hemorrhage or bleeding in his lungs. It is very serious and is being treated with steroids and pressure from the ventilator. To make this even more complicated; he also has coagulation issues and requires platelets once or twice daily to prevent further bleeding. He is back in the ICU and intubated once again; under sedation. We miss talking with him so much. Jeff and I just want to bring our baby home so he can see his puppy, play video games and build Lego’s with Colton.
Thank you for all that continue to pray and send positive thoughts to Jesse. Please pray for Jesse’s miracle. He is a fighter and does not want to ever give up. He will not let the side effects of harsh chemotherapy get in the way of his dream. He just wants to live his life like every other 7 year old boy.
It has been some time since...
It has been some time since our last update. On January 13th Jesse had his breathing tube successfully removed and eventually returned to the oncology floor. The team at Children’s Hospital worked very hard to create a plan to get Jesse home. On the day of discharge everything was going according to plan. The Massachusetts State Police patiently waited to escort Jesse home while our community eagerly waited to wave to Jesse. Folks lined the streets of Middleboro with yellow balloons. Just at that time, Jesse started having more difficulty breathing. We were devastated to announce that Jesse would not be returning home that day. However, we were overcome with joy that so many folks came together to provide Jesse with a spectacular homecoming.
Jesse's breathing become more difficult due to another occurrence of DAH - Diffuse Alveolar Hemorrhage or bleeding in his lungs. It is very serious and is being treated with steroids and pressure from the ventilator. To make this even more complicated; he also has coagulation issues and requires platelets once or twice daily to prevent further bleeding. He is back in the ICU and intubated once again; under sedation. We miss talking with him so much. Jeff and I just want to bring our baby home so he can see his puppy, play video games and build Lego’s with Colton.
Thank you for all that continue to pray and send positive thoughts to Jesse. Please pray for Jesse’s miracle. He is a fighter and does not want to ever give up. He will not let the side effects of harsh chemotherapy get in the way of his dream. He just wants to live his life like every other 7 year old boy.
Comment