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RFREE
October 14th, 2015, 10:12 PM
I waited all day for "The call". And well it never came. I got home waited til 4:45 and called them. Left message with receptionist and they called me back after 5. "Mrs Free we finally tracked down your results ha ha ha" I'm numb. I said "AND??""
"They believe its just a cyst and we aren't going to do anything at this time"" You just need to monitor that it don't get any bigger by doing weekly self breast exams and if they get sore come back to the office". Me... "UUU Yea there are 3 not 1 Her...""Oh yea thats what I meant to say if they get bigger and get sore come back in". So as if a golf ball size isn't big enough? How big should they get before they do something? The person calling don't know jack so why do they have them call?
I am beside my self. for one I don't think they actually seen them just the way she talked and mixed words.
I am calling them in the morning and have them fax my results to me and if they won't do that i am going there to get them.
The technician let me look at my mammogram pictures there when I had it done. There are 3 not 1. I know they aren't allowed to say what they think but I seen them. I also watched the ultrasound.
I do feel better but I do not think they have ever seen them and makes me wonder had I not called this afternoon would they have called me? I had been more than patient esp. after they told me 24 to 48 hours for results. OK 6 days later? I know it was the weekend in there too but really?

I appreciate all the prayers and good advice.

Jean Sewing Machine
October 14th, 2015, 10:34 PM
This is medical incompetence at its greatest level. This is important to your future health, you deserve to speak to a doctor about it, not some receptionist. So sorry you are having to endure this! You are a nurse, you know you have to be your own health advocate. Praying for you!

K. McEuen
October 14th, 2015, 10:40 PM
Ok,since you are going to be monitoring them, try something. Cut out caffeine. I had a friend whose breasts would get all lumpy and hard when she had caffeine. It didn't take much and they felt like bags of marbles. Once her doctor figured it out, she stopped all caffeine and they cleared up. They were cysts, but they went away/down without the caffeine. It seems weird, but her doc said it was more common than people realized.

Kgrammiecaz
October 14th, 2015, 10:44 PM
I suspect that had they seen an issue the radiologist would have alerted the doctor and you would have received a very timely call. So thats good news. But, I am like you. I want the results in my hand. I always have results faxed to me and the doctor. I paid for them so they need to send them to me. The results are written pretty clearly. And your threads have reminded me I am overdue for mine exam. Gotta make an appt. keep us updated.

mischiefkat
October 14th, 2015, 10:52 PM
RFREE, so sorry this has happened to you. Long ago the DOC or his NURSE used to make the results calls. Now, with the cost of everything going up who knows how much education the person who makes these calls has had. My doc belongs to a large group and every time I go there is a new"nurse". After you get copies of your mamo and U/S, ( you'll probably have to sign a record release to get them), you can take them for a second opinion. Prayers Kathy

Claire OneStitchAtATime
October 14th, 2015, 10:58 PM
Can you fire this doctor & find a new one? Glad to hear they are not worried but you will have more peace of mind with a more organized practice.

Deegles
October 14th, 2015, 11:08 PM
You know I recently heard news report about breast cancer and the over-treatment for what you are talking about. My mother had a cyst, and they insisted on removing it before they even knew what it was. So they did that and sent it off for biopsy and it was just a cyst. Some women have had their whole breasts removed for just cysts. I am so glad for you. They are treating less aggressively for anomalies in the breast now. If they are certain nothing is in the lymph nodes you are probably fine, and I am glad to hear your news. However I am concerned how much the healthcare system does not "care" about their patients. You showed alot of patience during this time. It would not hurt to get your results faxed and then get a second opinion. But then again, that is why it is called medical practice. They could be practicing on you.

SuzyQue
October 14th, 2015, 11:10 PM
Oh, honey.....I can feel your frustration and hear your concern. I think I would definitely call them again tomorrow and ask to speak to that Dr's nurse or nurse practitioner and get some facts! I would want a copy and do whatever it took to get it for your own files. My Dr. here will do that, but even if you had to pay a little for the copy, I would want it in my own hands, too. I am so sorry that you didn't get a concerned and caring person on the phone. She obviously has never been in your shoes! and can't put herself there. You definitely need to let the powers that be know how dis-satisfied you are by all of this! Not good rapport at all! Keep us posted, please. I will continue to pray. I haven't been in this situation, so I have no good advice, but hang in there and get that report correctly.

SuzyQue
October 14th, 2015, 11:13 PM
I agree with Karen about the caffeine......my MIL was like that, but I had forgotten about it.

Hulamoon
October 14th, 2015, 11:16 PM
I think I would call the doc and tell them you don't feel comfortable with the follow up. Doesn't seem right.

stationarymom
October 15th, 2015, 02:01 AM
While I agree you don't want to over treat a problem I understand your concern,as I said I had 4 masses and they were followed for 6mos with ultrasound.1x a month I would go and have an ultrasound done so the Dr. could see if there was any growth they measured to make sure.I would ask if your insurance would cover this.

happygram
October 15th, 2015, 02:46 AM
If there's another medical facility where you live, it might be a good idea to check it out and possibly switch there. Just reading your post made me feel very uncomfortable with the way the situation has been handled. It appears unprofessional and kind of haphazard. I don't mean to sound negative and hate that I feel that way, but your health and well being are involved now, and you deserve the best.

kensington
October 15th, 2015, 03:02 AM
My sister in law had those kinds of cysts in her breast, and one was as big as a golf ball. They can be stress related also. Hers were painful. They can drain them.

Get an appointment with your dr and ask to discuss them with him/her. They should have the report. My sister in law ended up eventually having hers drained and or removed and reconstructive surgery.

I believe if it had been cancer they would have called. The nurse probably just looked at a Dr's note and gave you what she read.

Suzette
October 15th, 2015, 08:48 AM
Totally unacceptable. Sadly, you still do not have a definitive answer. When you call and speak to an actual doctor (good for you!), if you are still concerned that they are not on top of this, I would definitely seek a second opinion. You don't want overtreatment, but you definitely want the appropriate treatment for this situation, whatever that may be. This is too important for them to be uncertain or wishy-washy about it. You are in my prayers.

mpattylou
October 15th, 2015, 09:44 AM
Sounds like you have lost confidence with your health care provider...after all they dropped the ball. Get a second opinion...you need to have peace of mind on this.

MRoy
October 15th, 2015, 09:52 AM
I would see the doctor and see what he/she says, get copies of the tests, and get a second opinion. I would probably camp out at the dr office and tell them I wasn't leaving until I got to speak directly to the doctor.

JCY
October 15th, 2015, 11:25 AM
I agree. Get a 2nd opinion. The wishy washy way that was handled is unacceptable. I request & keep copies of all test results, blood draw labs, etc. Whenever one of us gets an US or has radiology tests at the hosp., we request a copy of the disc & the dr's report. They'll do it for free. Just stop by the file room & request it. If you don't want to make a special trip back for it, they will mail it. We have to advocate for ourselves & stay informed.

TMP
October 15th, 2015, 11:27 AM
If it were me I would get a second opinion , for my own piece of mind. I also think you should try to find a health care provider your more comfortable with. Sending you prayers

judimccl
October 15th, 2015, 01:22 PM
I went through almost the same thing almost 2 years ago. I had felt a lump and my doctor sent me for a mammogram and ultrasound. Within an hour of leaving the place I had them done they called me and asked me to come and pick up the copies on a disk and take them to my doctor, and that they had already faxed the results to his office. I did that and when I got to the office was met by a young girl who informed me that they knew nothing about it. I repeated to her what the imaging place had told me, and that they had already faxed the results to the doctor's office. She went to check and again said they had no info! At this point I started to lose it and I guess my voice raised a little. She then informed me that I needed to calm down!!!!! I demanded to see the nurse practitioner, who informed me that they were almost certain I had breast cancer and they were scheduling me immediately for a biopsy. I proceeded to thank her and told her that I knew deep down that it was breast cancer, and just needed someone to treat me like I had a little bit of intelligence! On my way out of the office I stopped to talk to the original young girl and told her I had just one question to ask her - "how fast would you have found those results if it had been someone in your family?" Good luck to you and I will say a prayer.

Vonnie
October 15th, 2015, 04:12 PM
I had a breast biopsy a few years ago and my doctor sent the x-rays to another doctor for a second opinion (It was his idea). He said it does not hurt to get a second opinion. Luckily for me it was something called calcification (not sure if that's the right spelling).

Vonnie
October 15th, 2015, 04:14 PM
I went through almost the same thing almost 2 years ago. I had felt a lump and my doctor sent me for a mammogram and ultrasound. Within an hour of leaving the place I had them done they called me and asked me to come and pick up the copies on a disk and take them to my doctor, and that they had already faxed the results to his office. I did that and when I got to the office was met by a young girl who informed me that they knew nothing about it. I repeated to her what the imaging place had told me, and that they had already faxed the results to the doctor's office. She went to check and again said they had no info! At this point I started to lose it and I guess my voice raised a little. She then informed me that I needed to calm down!!!!! I demanded to see the nurse practitioner, who informed me that they were almost certain I had breast cancer and they were scheduling me immediately for a biopsy. I proceeded to thank her and told her that I knew deep down that it was breast cancer, and just needed someone to treat me like I had a little bit of intelligence! On my way out of the office I stopped to talk to the original young girl and told her I had just one question to ask her - "how fast would you have found those results if it had been someone in your family?" Good luck to you and I will say a prayer.

So sorry you were treated like this! How are you doing now. Did they get all of it?

cv quilter
October 15th, 2015, 06:13 PM
Oh, honey.....I can feel your frustration and hear your concern. I think I would definitely call them again tomorrow and ask to speak to that Dr's nurse or nurse practitioner and get some facts! I would want a copy and do whatever it took to get it for your own files. My Dr. here will do that, but even if you had to pay a little for the copy, I would want it in my own hands, too. I am so sorry that you didn't get a concerned and caring person on the phone. She obviously has never been in your shoes! and can't put herself there. You definitely need to let the powers that be know how dis-satisfied you are by all of this! Not good rapport at all! Keep us posted, please. I will continue to pray. I haven't been in this situation, so I have no good advice, but hang in there and get that report correctly.

This is GREAT advice. Exactly what I was thinking. Try to talk to a medical PROFESSIONAL (doctor, NP) and tell them your frustration. And get the copy of all for your records. Prayers from AZ for you. Sharon

shirleyknot
October 15th, 2015, 06:23 PM
Are you by chance using the KentuckyCare clinics? They are called ARCare here, same outfit, and a more incompetent bunch of medicals I have never met, and I've met quite a few in 68 years.

RFREE
October 15th, 2015, 07:56 PM
Ok,since you are going to be monitoring them, try something. Cut out caffeine. I had a friend whose breasts would get all lumpy and hard when she had caffeine. It didn't take much and they felt like bags of marbles. Once her doctor figured it out, she stopped all caffeine and they cleared up. They were cysts, but they went away/down without the caffeine. It seems weird, but her doc said it was more common than people realized.

Trouble is I barely drink a cup in the morning. Really could take it or leave it. Don't drink coke or coke products but I do drink Tea decaf. Which has caffine in it. Probably worth dropping the tea for sure.
Thanks

RFREE
October 15th, 2015, 08:13 PM
Are you by chance using the KentuckyCare clinics? They are called ARCare here, same outfit, and a more incompetent bunch of medicals I have never met, and I've met quite a few in 68 years.

No I have never heard of Ky Care. But as incompetent as the outfit I went to are they should be introduced.

RFREE
October 15th, 2015, 08:25 PM
I called a very reputable Dr. office ( mammography specialist) today to see if he reads results from recent tests and his nurse said he usually doesn't but she could not believe the way they have handled this. She put me on hold and came back and said she talked to the technician and she thought I should ask my Dr. to refer me to a surgeon and at least let them look at the films and make the decision as to whether they should aspirate or not. They also said if I have my films sent there they could do a 3 month follow up and have something to compare to then.
I'm looking into a second opinion. but I know one thing . I will not go back there or recommend them to anyone. The complete blazaaa attitude is way unprofessional to say the least.

mommiepainter
October 15th, 2015, 09:07 PM
For exactly the treatment you received, I don't go to the local hospital but one thirty minutes away. The doctor reviews the scans while I'm there and then meets with me. They do the ultrasound right away if needed. You should not have to put up with waiting. You were far more patient then I would have been. I would be looks for a new facility.

auntiemern
October 16th, 2015, 09:17 PM
Oh Rhonda, I feel so bad for you. They really should have had some one talk to you that actually knew what they were talking about.
As far as how long it took...I know it is so hard to wait to hear ANY results, but my doc once told me the longer you wait the better it is. That if it was something serious, they would notify you sooner.

bhaggerty
October 17th, 2015, 08:39 AM
You need to call back and ask for the doctor to call you back. Sometimes the person calling you with results is not a nurse but a Medical assistant and they do not know the answers and they probably have never seen your chart or your results. They are just trying to relay a message and they can't answer questions to most persons satisfaction. Call and request to speak with the doctor - to have them call back (usually over a lunch break)

mary3100
October 17th, 2015, 09:25 AM
Be sure to watch this documentary it has all the latest information!
https://go.thetruthaboutcancer.com/

Bubby
October 17th, 2015, 09:32 AM
All of the above, Rhonda. Insist on having the report in your hands and make an appointment with a different doctor for a second opinion and some professional medical advice. This is absurd that you've been forced to go through this torment. Love, Hugs & Prayers.

easyquilts
October 17th, 2015, 01:14 PM
There is a saying on the Breastcancer. org website (site recommended by medical people)... It is this...

The only good lump (cyst, whatever) is the one n the pathologist's jar.... It simply means get it OUT.

There is no way I would ever do the "wait and see" thing.... I've seen that one go sideways.... The stakes are just too high.

It's my opinion... I wish you the very best..

judimccl
October 17th, 2015, 10:06 PM
Vonnie - yes, I am doing great now, taking a pill every day for 5 years. Had a bilateral mastectomy within a month of the diagnosis, but due to problems with healing they could not do chemo, thus the pill for 5 years. But my tumor markers have been negative for almost a year. God is good for sure.