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View Full Version : Every weekend, same story... (Small vent)



RockinLou
November 23rd, 2014, 06:04 AM
Will a weekend ever pass that my husband is not sick??

He has severe plaque psoriasis and the medication he takes to keep it under control has some side effects, they have always been a part of our life, always will be, and I have patience and understanding for that... But we have days when he is sick from that frequently enough that when he gets sick from poor choices, I just get frustrated.

We just came home from a friends' daughters birthday party, just our two kids, their two kids, and we all took the kids to a playground and to Burger King. Well, my husband ate a BUCKET of greasy chicken wings, and a milkshake. Seriously? You throw up when we get home and expect sympathy??

I'm hiding in my sewing space because I just can't handle the stupidity right now :icon_rolleyes: even our daughter who is not quite six yet said to him "that was not a very healthy lunch, I don't think your belly wanted all those wings".... Sigh...

Back to my snowman table runner, this will be my sanity this afternoon....

meliswan
November 23rd, 2014, 09:19 AM
I totally understand your situation. My DH does the same thing. He will make bad food choices, throw up all night from heartburn, have to sleep on the coach sitting up, and refuses to take meds (not even a tums). I don't even ask in the mornings if he's ok anymore. I'm positive he has esophagus damage, but won't do anything about it.

Iris Girl
November 23rd, 2014, 09:41 AM
self inflicted from a grown man who knows better. No pity, just go to your sewing room and be done with it. Men they never learn.

BeachLizard
November 23rd, 2014, 11:37 AM
Have you tried alternative therapies? I was diagnosed earlier this year with pustular psoriasis. It is a rare form of psoriasis and shows up on the hands and bottom of the feet (though I did have it in my arm pits which they couldn't explain and was very painful). It can also be internal. I had to put a steroid on my hands and feet and cover in plastic wrap every night. How sexy is that? My meds were not working. I started juicing and drinking Taheebo tea. My arm pits and hands have cleared completely and my feet are almost clear. It's been about 5 months since I started the alternative route and since I'm seeing results, I will continue. I'm just offering a thought that might help. Do your research and see what you think is best. I did this because I am very medication intolerant. Most anything other than Motrin makes me ill and the steroids they gave me to take by mouth (Prednisone) caused pancreatitis. So noooo more of that. I do hope you can find something to help because that's a miserable way to live.

BellasQuilts
November 23rd, 2014, 12:05 PM
You can lead a horse to water......

RockinLou
November 23rd, 2014, 12:06 PM
Well, he has researched alternative therapies ( he is on injectable biologics and currently on methotrexate too) but that would actually involve a lifestyle change that he is not prepared to embrace. He claims he wants to do it, then he never starts...

Maybe I'll get him a juicer for Christmas... I'm probably getting a new food processor... Very exciting.

RockinLou
November 23rd, 2014, 12:08 PM
self inflicted from a grown man who knows better. No pity, just go to your sewing room and be done with it. Men they never learn.

Nope! Never! He got no pity, and I got lots done on a table runner while the kids played nicely on their own. I just pretended it had not happened. When he ate cereal for dinner he admitted that lunch was a big mistake. DUH!!!

bubba
November 23rd, 2014, 04:50 PM
MM has plaque psoriasis too. He also has psoriatic arthritis and has had surgery to fuse joints in two of his fingers. His psoriasis covered at least 60% of his body. He failed drugs and the specialist they sent him to put him on Enbrel (we refer to it as the wonder drug and they refer to him as their poster child). When I went to pick up the first prescription (eight shots), the pharmacists told me I owed $4800!!!! Well, I nearly pooped my pants as I explained I had a copay of $5. She told me that this drug did not qualify as he had not failed the formulary to be qualified to take this as it is so expensive. Well, by the time I was done with her, explaining if the doctor did not feel it was needed it would not have been prescribed, the entire pharmacy had cleared of the people waiting. Guess I can be scary at times when the bear in me comes out!!

Back we went to the doctor. MM had failed two of the drugs and the doctor intentionally put him on one he knew he would fail so he could get the Enbrel, which after suffering thru the third drug, he finally did. Within less than six months, the visible symptoms were gone, he could balance on one foot and kneel again....that drug is a miracle!! If your insurance will not pay for it, there is a program thru the company that makes it where you pay a small amount (when we were told of it, it was $75 a month) to be able to have it. MM is down to four shots a month, one each week and the cost would be $400 per shot. He can't stop using it as when they took him off it a couple years ago, it caused his kidneys to almost fail (went down to 22%) and they did not recover until they finally put him back on it. Today they are at about 70% but they won't get any better.

songbird857
November 23rd, 2014, 06:59 PM
... MM had failed two of the drugs and the doctor intentionally put him on one he knew he would fail so he could get the Enbrel, which after suffering thru the third drug, he finally did.
This just amazes me, and not in a good way.

bubba
November 23rd, 2014, 07:40 PM
This just amazes me, and not in a good way.

It amazed us too! In my head, the doctor would not have prescribed the one drug if he did not feel that was what was needed. But because these places are about the $$, they make you try and fail the cheaper drugs first. Thankfully, he was only on the third one for a couple weeks before he qualified for the Enbrel, but I don't think it ever should have happened. It's all about the $$.

alliek
November 23rd, 2014, 09:59 PM
It amazed us too! In my head, the doctor would not have prescribed the one drug if he did not feel that was what was needed. But because these places are about the $$, they make you try and fail the cheaper drugs first. Thankfully, he was only on the third one for a couple weeks before he qualified for the Enbrel, but I don't think it ever should have happened. It's all about the $$.
Amazing yes, and pretty scary!

Simply Quilting
November 24th, 2014, 07:06 AM
It amazed us too! In my head, the doctor would not have prescribed the one drug if he did not feel that was what was needed. But because these places are about the $$, they make you try and fail the cheaper drugs first. Thankfully, he was only on the third one for a couple weeks before he qualified for the Enbrel, but I don't think it ever should have happened. It's all about the $$.

Part of the time it is insurance and their $$$. I had a friend who suffered through I don't know how many high blood pressure medications before she was allowed to have the one name brand medication that worked and didn't make her sick. She had been on this one for several years without any problems but the insurance company wanted to cut so they made her try all the others first which put her through misery to put it mildly before they would allow her to have the name brand one back.

RockinLou
November 24th, 2014, 11:03 AM
DH was on Enbrel years ago, but never cleared more than 50% on it! then he moved to Humira and had great success for a few years, now he's having to support the Humira with Methotrexate as well.

We teach at an international school, so he gets a year supply of the Humira at once, we pay $500 of his deductible and that's it... We've played the insurance game in the past, it is no fun, we are shocked by how easy it is to get 50,000 prescription for 11 months filled now that we are on Cigna Envoy.

bubba
November 24th, 2014, 03:45 PM
Does he do the Humira in the IV form? I've heard that is even more effective than the injections and you only do it every few weeks. I have a friend who does the infusions for Crohns and she has been in remission for several years now and as a result, her psoriasis also disappeared!

Auntpiggylpn
November 25th, 2014, 02:47 AM
Well, he has researched alternative therapies ( he is on injectable biologics and currently on methotrexate too) but that would actually involve a lifestyle change that he is not prepared to embrace. He claims he wants to do it, then he never starts...

Maybe I'll get him a juicer for Christmas... I'm probably getting a new food processor... Very exciting.

i also have plaque psoriasis which has led to psoriatic arthritis. I have been on the injectable Humira for over 4 years with excellent results. I started out on the Methotrexate and Plaquinol and when that didn't work, I was put on the Humira and taken off Plaquinol. When I changed Dermatologists (because of office staff, not the Dr herself) the first thing my new dermatologist did was stop the methotrexate. There is no reason to be taking both the injectable and the methotrexate at the same time. Methotrexate has some terrible side effects. You or your husband may want to ask his dermatologist about continuing with the methotrexate.

RockinLou
November 25th, 2014, 03:22 PM
He was put on the methotrexate with the Humira because he is still over 50% coverage with Humira. He flared up to 80% this fall! and the methotrexate was to help over come the flare. He will taper off it and be done in February...

He would be a good candidate for the IV for Humira if we actually lived in the US for more than 6 weeks per year.

I know he would see further benefits with some lifestyle changes, but like others have said... You can bring a horse to water...