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grannyann
January 29th, 2014, 10:53 AM
Updated posted by Suzanne Gilbert Heikkila 0 mins ago

It has been some time since...



It has been some time since our last update. On January 13th Jesse had his breathing tube successfully removed and eventually returned to the oncology floor. The team at Children’s Hospital worked very hard to create a plan to get Jesse home. On the day of discharge everything was going according to plan. The Massachusetts State Police patiently waited to escort Jesse home while our community eagerly waited to wave to Jesse. Folks lined the streets of Middleboro with yellow balloons. Just at that time, Jesse started having more difficulty breathing. We were devastated to announce that Jesse would not be returning home that day. However, we were overcome with joy that so many folks came together to provide Jesse with a spectacular homecoming.

Jesse's breathing become more difficult due to another occurrence of DAH - Diffuse Alveolar Hemorrhage or bleeding in his lungs. It is very serious and is being treated with steroids and pressure from the ventilator. To make this even more complicated; he also has coagulation issues and requires platelets once or twice daily to prevent further bleeding. He is back in the ICU and intubated once again; under sedation. We miss talking with him so much. Jeff and I just want to bring our baby home so he can see his puppy, play video games and build Lego’s with Colton.

Thank you for all that continue to pray and send positive thoughts to Jesse. Please pray for Jesse’s miracle. He is a fighter and does not want to ever give up. He will not let the side effects of harsh chemotherapy get in the way of his dream. He just wants to live his life like every other 7 year old boy.

easyquilts
January 29th, 2014, 11:06 AM
Thank you for this update.... My heart aches for you, Jesse, and your family.... You have all been though so much.

My youngest grandson, Andrew, is seven.....such a wonderful age... So I get how much Jesse wants to just be a seven year old kid, doing seven year old stuff..... The enthusiasm and determination of a seven year old little boy should never be underestimated. They are wonderful...

I will keep all of you in my prayers.... God Bless you all...

Carolyn23
January 29th, 2014, 11:30 AM
This update just breaks my heart. I can't imagine how difficult this roller coaster ride is for all of you. My prayers for Jesse will intensify today!

HandsOffItsMine
January 29th, 2014, 11:34 AM
Ann, know that Don and I have Jesse in our prayers. Also many of the Cyber Elves have Jesse on their prayer list. He is one brave boy.

Prayers and healing light heading to our Little Jesse. Prayers and strength to his parents and family.

Huggers, Ruby and family

Bubby
January 29th, 2014, 01:36 PM
My prayers continue for sweet Jesse. He's really a brave little boy. Prayers also for the whole family.

Simply Quilting
January 29th, 2014, 01:57 PM
I'm so sorry that he did not get to come home. Praying that he will be able to come home soon and get to do the normal fun boy stuff.

Genny
January 29th, 2014, 02:11 PM
Even though I don't know Jesse personally I feel I know him thru you and continue to pray for him daily.

SallyO'Sews
January 29th, 2014, 02:43 PM
Thank you, Ann. I am praying for this precious family. May our Heavenly Father wrap them in His loving embrace and grant them grace for every moment. In Jesus' name, amen.
Blessings, ~ Sally \0/

grannyann
January 29th, 2014, 03:06 PM
Thank you all for your continuing prayers for Jesse.

alliek
January 29th, 2014, 04:08 PM
Beautiful boy, stay strong. In God's name we pray.

brook
January 29th, 2014, 04:15 PM
My heart just aches for Jesse and his family. Praying.

WendyI
January 29th, 2014, 04:37 PM
I'm so very sad to read these posts. Sending warm thoughts to Jesse, you and all his family. ((((HUGS)))) xox

dwil23
January 29th, 2014, 04:46 PM
I continue to pray for Jesse, too. Heartbreaking news that he was not able to go home. I pray for his recovery, strength and comfort for your family and for wisdom for everyone in the medical community that is working for him.


(((HUGS)))